First the good experience:
For the most part the nurses were on top of his care, PT, OT & SP are excellent his doctors were good one in particular I thought very good. What they said they would do in his plan, schedule or medical changes they actually did, ( ex. He got a shower everyday at the same time). Once I made my disappointment very clear the Case Mangement director , his assigned Case Worker and doctors worked quickly to resolve the problem. I was told gently the one thing they could not change was the possibility that my son would have to go to a skilled nursing facility. If his medical condition can not be stabilized Insurance/ healthcare system won't allow anymore days at an Inpatient Rehabilitation facility.
My son has a sever traumatic brain injury which causes his diabetes insidious to be unsteady. He was put on a pill form of DDAVP prior to being transferred to the hospital. However on March 6 his sodium levels were high so his endocrinologist switched his DDAVP to injections and I was told the morning after they actually started it that he was being discharged in two days to home ( Illinois) the social worker had no approval from any program to send him to. She told me I had to find and set up my own doctors for his needs. Neurologist, endocrinologist, neuroopthamalogist, neurosurgeons etc.... I tried only to be told I can't do that he has to have a referral. I have to either call my insurance company and ask them to send a referral or call the doctors at KUMED.
Then I threatened to drive directly to KUMED ER department if they discharged my son without a safe plan for him. That got their attention and so they extended his discharge date to March 17th. This morning they informed us my son will be switched back to pill form of the DDAVP and if it is uncontrolled again he has to go into a Skilled Nursing Facility.